Update on my Health

Well, it has been a while since I last really posted, never mind did an actual video blog (have recorded a couple but not edited or posted them sadly), I keep thinking I need to post, and yet getting around to doing so seems to be so blasted hard to do.

Been feeling a little down for the past little while, big time since I had to have two teeth extracted and found out that I still had an infection in my mouth something like 3 weeks later needing to have an emergency extraction because another tooth broke and come to find out at the base of it the infection was still raging, so ended up losing that tooth also.

I don’t know if the infection has cleared or not as yet, I’ve done three-course of antibiotics so I am hoping that when I see the periodontist Tuesday that the infection is gone and that there are no further issues, but I fear that will not be the case, sadly.

My next appointment is scheduled to be one that will explore to see if I have any cavities, and well I know I do – it will be a minor miracle if I don’t have any. But I hope and pray that I am clear but know how unlikely that is to be. But there is always hope.

Outside of that, saw the new GP who took over from my old one and I am NOT pleased with her at all. I feel let down and left behind not to mention medically gaslighted by her. She pretty much dismissed my level of pain and discomfort not to mention that I actually need pain medication, her answer is Advil and Tylenol are all that is necessary to control the pain. What a bleeping joke, she has no freaking clue what type of pain Dystonia and Porphyra cause never mind Osteoarthritis and Disk Degeneration.

I have read time and time again the dismissal people have posted online about their own doc and I was counting my blessings that I had a doc who listened and treated me, but now I am in the same state as them and I am like them questioning my own existence.

I feel very much let down by my previous medical provider, I feel she failed me. I know she likely went through hockey sticks during the pandemic and being a palliative care doctor likely was even harder on her than being a general GP so I don’t blame her for needing to move on and away – but I still feel like she could have found a better doctor to take over her practice (then again it is very much possible that she was scrapping the bottom of the barrel to even find a physician looking to take on a private practice vs going into a clinic setting.

So feeling like I have been virtually dismissed bu her words, I am going to be trying my best to fill the gap and get what I need to be done regardless of is she likes it or not and if it means finding another who will take me seriously and is a better fit then so be it, some doctors do not deserve to have a serious private when they don’t listen to those who actually live with conditions that are outside of their experience.

Sighs, like many, know finding a doctor who can treat one’s condition or conditions isn’t easy big time when it is a condition that has very few treating specialists in the field who can treat it. That is what I am facing trying to get into seeing the needed specialists when getting a referral to them is going to be an upwards battle as when I asked to see a movement disorders specialist or the local clinic (which requires a referral) I was refused, she said that my existing specialist needed to do the referral – funny thing is I only have my endocrinologist and no other specialist treating me and my endocrinologist said he can’t refer me to such because it is outside of his area and that my GP needed to be the one to do it (anyone for a circle that just goes round and round and round?)

Also to add to the insult the fee’s that we had been told would be waived, well it’s no longer the case. Every script refill done won’t happen without paying for the script to be written, every note/document that is needed by disability will be charged at 20.00 per page, and in short, there is no medical care that I will get outside of basic OHIP covered stuff from this new GP unless I can pay the fees for it to happen, so no more 30 min appointments just 5 to 10 minutes max (as ohip doesn’t cover more then 10 min apparently) no more then 1 question asked at each appointment so it means NEVER getting proper care because we can’t afford the travel back and forth and she won’t approve medical transport which disability demands she approve if they are to cover it, so there is no bleeping way I can get my appointments covered when she won’t freaking well agree to do so.

Sighs, so yes there is a lot that has happened and is happening that thanks to the pandemic should never have come into place – I shouldn’t have lost the medical support system that I had started to rely on, that or I should never have let myself develop the reliance (but I felt that I had finally found a doc I could trust and who had my back, and as I said now I feel like I have been betrayed).

Well, hope everyone is doing decent and will post more as time does allow for it to happen, take care till then!

Video Games I'm Currently Playing

Well, I have been playing various games, and well guess it is time to either make a regular post about what games I am officially playing that I am going to stream also or at least what games I am playing that might have the potential to be streamed, not sure which it is right now but here goes nothing…

XBOX
Minecraft (Bedrock – Beta Edition)
Farm Together
Sims 4
Cities Skyline (Mayors Edition)
Two Point Hospital (Deluxe Edition)
TT Isle of Man
TT Isle of Man 2
Fishing Planet

WINDOWS
Cities Skylines
Farming World
Fallout Shelter
Big Farm Story
Two Point Hospital
The Sims 4
Software Inc.

MAC
The Sims 4
The Sims 3

OCULUS (can’t stream from)
Beat Saber

ANDROID
Idle Miner
Merge Farm
EverMerge
Fallout Shelter

SWITCH (will not stream from)
Farm Together

Lousing another Tooth

Sighs, this is getting most annoying, to say the least, last month I lost two teeth to infection one upper and one lower, and yesterday I lost yet another one also to infection, and that’s after having been on antibiotics for the better part of a solid month!

The dentist says that I need to get better control of my glucose levels, something that I have been trying to do for the better part of 6 months now! My A1C was 7.1 so it wasn’t that bad all things considered, but still not as low as would be liked (in the high 5s to low 6s).

I am feeling rather defeated when it comes to what is happening, not only has my general health taken a hit during this pandemic but so has the care of my teeth, but the teeth care has been an ongoing issue for a few years now, mostly in regards to getting any care since finding someone willing to work on my teeth has become an issue.

I’ve tried getting into either of the local dental colleges that offer treatment on a sliding scale and got turned down by both due to my various medical conditions – getting told that I am too high risk for them to take on! Like what the fudge, too high risk? bleep!

So as a result I’ve had care issues time and time again, getting what care that I do need when I need it. Even emergency care has been a problem more than once and only gotten resolved when I couldn’t take it any longer and Norman called and got the ball rolling (I call and nothing, he calls and something happens – totally annoying!).

Outside of that, been surviving as best as possible with what we have. Haven’t gotten done as much as I’d to have gotten done, but I’m at least getting some things done – just not as fast as it really needs to be done.

Life Happenings - Ups and Downs of Life

Well, lots have been going on in the world and for whatever reason, I’ve not been feeling very energetic. I have had so many ideas that I want to get done and published via TikTok and YouTube not to mention streaming and everything, but for whatever reason, I haven’t done any of them. I just haven’t been able to get into the right brain set to get it done 🙁 might be a bit of depression that I have gotten into a funk about but it also feels like I don’t have the energy to do some of it.

I don’t know what is going on, reaching out to my GP is almost useless as with the transition going on I don’t have a regular person right now, the GP that I had just gotten slightly before the pandemic started is leaving the practice and has someone taking over from her and well I won’t be seeing the replacement until next month and I can’t get into seeing anyone until this new one takes over, so I am actually feeling like I don’t matter.

She had made me feel like I did matter and that she had my back, then the pandemic struck, and like so many others’s I lost so much medical care that I don’t even know if I’ll be able to regain everything that has been lost over the past two years. I know I won’t regain the doc I had since the one taking over has none of her experience dealing end of life clients. I might not be at that point in life, but much of the treatment and stuff that was happening was similar and it was helpful to a degree for getting the treatment that I needed.

I don’t know how to feel right now, I had the fear that I would lose my GP as the pandemic progressed and I had less and less contact with her, then to get the message that she was leaving made my heart sink to see my fears come true.

Currently, I am trying to figure out what the world is going on with my Dystonia treatment. I had left a message for the neurologist who said that they were going to be putting a request into the Movement Disorders Clinic, but that was back in September of 2021 and NOTHING has yet been done. The neuro hasn’t even gotten back to me about it or the fact that they wanted me to have a few tests to rule out a few other things (like Parkinson’s).

I haven’t heard from anyone and my GP wasn’t kept in the loop. I have no bleeping clue what is going on or if I’m back at square one and being left to go another decade of this (don’t think I can’t do this another decade without help). Sighs, took me two years to see that neurologist and I know the referral for the movement disorder clinic is on average 2 years, which means 2024 might well be the earliest things might be seen (and if I’ve lost this much in just a year, how much more will be lost by then that I won’t be able to regain?)

Maybe there is another way to get into a Dystonia specialist outside of that clinic, but for that I need the Canadian Dystonia Association to give me contact info for such ppl and so far that hasn’t panned out, getting such info (though one did recommend a facility in Hamilton – freaking bleep that is blasted far to travel, I could drive it I think – but driving back I don’t know if I’d have enough spoons/energy to do so and we can’t afford to stay overnight so it just doesn’t seem like a feasible option).

The only thing right now is I am looking forwards to the Abilities Expo that is happening in May 2022, because I might to able to get answers to the wheelchair issues that I have been dealing with since the one I have been dropped off and left. Sighs, they still blasted well insist that I signed off on it being my perm chair when I did nothing of the sort. I was told it was a loner for me to try out and instead I get stuck with something that I told them I can’t lift into my vehicle which defeats the purpose of having it when I can’t use it because I can’t take it with me when I go out! I can’t even push myself in it anymore, I don’t have the arm strength to do so.

I am starting to think that I will have to figure out how to buy a custom chair for myself because there is no way that ADP will cover another chair because of the crap that the twit who stuck me with this one pulled. I am hoping that I am wrong and that maybe one of the vendors will be able to help me, but I’m not counting on it (though I am dreaming it to be the case). It is amazing how people are treated, a friend of mine had gotten great treatment for her medical (same agency just different city) and I have gotten crapped on time and time again. Sighs, it's almost enough to make me feel like as I said at the start – I don’t matter.

Well, post more as time does allow for it, take care, everyone!

Dental Surgery

Well, the dental visit went well enough, I did end up having to have two teeth extracted, unfortunately. I knew going in that it was a high possibility that I would end up having the extraction done there and then, but there was also the possibility that it would have to wait due to the infection that was there (and yes it was still there, it hadn't gone away with the weeks worth of antibiotics that I had been prescribed, it was still raging and according to him not under control). 

So I am hoping with the new course of antibiotics that the infection is finally dealt with, if not I have no idea what is going to be done since the normal course of hitting the hospital for a short stay right now isn't considered to be a feasible option (as they are still dealing with covid and are still short-staffed) from what I have been told. So here I am praying that things work in my favor, and don't need higher involvement of treatment. 

So what actually happened at the appointment? Simple I went in and the dentist took a look at the Xrays and said that it was his assessment that it did need to come out, when I told him about the other tooth, he said it was likely referred pain and I was like, I don't think it is not based on the level of pain it was causing me. Turned out I was right, the hole that was causing issues did have an infection in it because there was still part of a tooth holding on for dear life (not all of it had fallen out like my primary dentist had said it had (apparently it was a shard that had been covered so until the infection it wasn't showing itself) at any rate so instead of just the one area needing to be extracted it meant two areas needed extraction, once considered a minor extraction and the other a major. 

The upper hole was the simple one for him to pull what was left of the tooth and get the root with it, the bottom molar was one that he had to drill and break up because though it was a bad tooth it was a large tooth with a solid filling and the tooth next to it has a cap, so he didn't want to risk uncapping the other tooth if it could be helped (since that tooth is itself now in jeopardy of being lost now that the tooth next to it is gone). 

One thing that was a first for me, at least as an adult. He asked if I wished to have gas to help with the freezing, I told him to use his best judgment on the matter as I was willing to have used what was felt to be the best option to get the job done in a timely matter. The truth is I haven't had gas since I was a child and it was used on me only when I was at the Sick Children's Hospital Dental Clinic. I went to the clinic, because as a child when my adult teeth came in my baby teeth didn't fall out, so to make space for the adult teeth I had to have the baby teeth pulled, some of the baby teeth were never pulled because there never was a replacement tooth. The semi-funny is the tooth that was pulled was one of the last remaining baby teeth I have left in my mouth, I now only have two left that are my original issue.

At first, it was not easy to get myself to breathe in the gas, my brain/body was fighting the process. Having forced "air" going over my nose tends to shut down my ability to breathe and forcing myself to breathe though that is really hard to do, I did manage to do it but it wasn't easy to keep trying to do it because all thought-out the process my ability to breath kept shutting itself off. 

I did make it through and I think some of the processes for the extraction was actually helped with the gas because I didn't smell the drilling or have to the smell of the gloves, etc. It did make a big difference in that respect. I guess the gas itself did help keep the use of the freezing down (I don't really know) but I assume that it helped or he wouldn't have offered it as an option. 

He did have to give me a decent amount of freezing to make things properly frozen and the upper portion freezing of course was the first to wear off - it had dissipated by the time I got home the lower part lasted around 5 hours which isn't bad in general, though sadly the breakthrough pain was happening within an hour so I did have to take something when I got home to cover the pain level.

I'm now 24 hr post and still experiencing pain, it hasn't reduced as yet as I had hoped but research says that it can last upwards of 72 hours to a week post depending on how bad the extraction was needed (aka infection, etc) but that if last too long or gets worse that something called Dry Socket could be happening and that treatment for that will be needed (I've had that happen once from extraction, so I hope this is going to be the case - but fear it likely will be with my track record of the past). 

I will post more as time does allow for it until then take care, everyone!

Trying to get back into the swing of things

Well, it has been a little while since I posted anything when it comes to regular blogging, even longer since I did anything regarding a vLog which I still need to get around to doing, I keep making the time to do it but I keep putting it off for one reason or another. I have done a few TikToks though, but nothing along the lines that I am wanting to get into doing, once again it's the motivation that I am in part lacking when it comes to getting onto that particular project. 

Part of me wants to start something like I've seen other's do, like the hockey stick desk and the like, but I've been having trouble fleshing out a specific area that Id likes to get into since there are so many that catch my interest but non which feel I could pull off, at least not as things currently stand (the wrong headspace being one of them). 

 I'm also currently dealing with some medications that I really do not wish to deal with, I have an infection in my mouth that has required antibiotics and I am not sure if it has worked or not but will know Tuesday when I see the Orthodontist who might or might not be extracting the tooth that is the issue depending on if the infection is gone or not (he won't take it if the infection isn't gone because of how it could cause more trouble then to leave it sort of deal). 

I'm actually scared to see the orthodontist because I am scared of the pain from getting the tooth pulled, but also from the feeling that goes along with the extraction including the drug used to do it, I don't like how it makes me feel and I don't like how my body reacts to it when all is said and done, but I know that it needs to be done I just wish it would be easier then it is (as in part of me would rather be sleeping when it gets done and not wide awake type deal, but that isn't an option ). 

But in other news I am trying to get back into streaming and that has started with playing Minecraft more so am working on streaming that at the moment to get myself back into the swing of things, I might expand to my other games in time, but right now I'm focusing on a single game at least for my main play to see if that will help get me more focused. 

Well post more as time does pass, take care everyone!

Happy New Year

 Well it is the start of a new year, so may 2022 be a better year for you then the previous years have been.